Naturally Healthy 4 Life's Blog

A blog about health, nutrition, fitness and wellness

The Trinity of Wellness: Body, Mind and Spirit

body-mind-spirit

At the end of each year, like everyone else, I find myself reflecting on the past year and thinking about where I was then compared to today.

Last December, I was in the middle of a long taper Prednisone treatment, following another terrible spike in my flare-up. Hydroxyzine proved to be the magic medicine. I tapered off the Prednisone and each day the hives and swelling were smaller and smaller until they disappeared altogether (mid-February). I have been in remission since. It was the longest stretch of CIU (Chronic Idiopathic Urticaria) that I have ever had, spanning a year and a half this flare.

I am not a sickly person. In fact, I have been very physically fit for the last 15-20 years. While I no longer run (too hard on the knees!), I regularly strength train and do cardio, I practice yoga daily, and I eat extraordinarily healthfully and mindfully.

However, in the years preceding this flare, three of our children left home for college (leaving us with an empty nest), we lost two beloved family pets, my husband and I both changed jobs (with my husband becoming an independent contractor) – all of which caused incredible stress and put a strain on my closest relationships. I denied it existed – particularly to myself. Instead, I buried it all deep inside (“I’m strong – I can handle anything!”). The cortisol in my body continued to build. Cortisol (aka the “stress hormone”) usually fluctuates throughout the day and night, rising in response to a stressful event, then returns to a normal level following the stressful event. However, my cortisol level went up and never went down, causing my immune system to go BANANAS. My body began attacking itself and nearly everything I touched or ingested. Writing about it now actually makes my chest tight. It was a terrible couple of years and I am so grateful to now feel SO good.

The life lesson I finally learned while trying to recover from this flare is that true health is more than just the fitness of my physical body. It includes the health of my mind and my soul, as well. Until this year, I was truly unhealthy in that sense, and it is what ultimately led to this flare.

During the flare, I underwent counseling with a gifted psychologist. I insisted that treatment not include pills. Instead, we talked about how I got here, and he taught me how to listen to my body in response to my emotions – breathing, meditation, and being present – and how to forgive myself for not being perfect.

I am not big on New Year’s resolutions, but last January, I made a decision that 2016 was going to be the healthiest year of my life.   I think I succeeded.

I know I am not as healthy as I could be, and some days are harder than others, but 2016 HAS been the healthiest year of my life thus far. I will certainly try to top it in 2017.

Happy New Year!

January 1, 2017 Posted by | Fitness, Health, Uncategorized | , , , , , , , , , , | 2 Comments

Patient Heal Thyself

Yoga Meditation

As mentioned in prior posts, after another angioedema episode that brought me back to urgent care for another epi shot, I started on a strong dose, slow taper of prednisone. It did the trick – no hives, urticaria or angioedema for the course of the Prednisone.

I finished the Prednisone two weeks ago. A week ago, I woke up with a couple of hives and over the last week, I have had a few hives here and there – no giant hives, no urticaria, no angioedema – nothing like a real flare up.

So I AM rebounding after discontinuing the Prednisone, but it is a small rebound. I am going to hold onto that as a good sign.

I visited the immunologist last week and received a diagnosis: Chronic Idiopathic Autoimmune Urticaria, which is caused by anti-FcεRI and less frequently, by anti-IgE autoantibodies that lead to mast cell and basophil activation, thereby giving rise to the release of histamine and other proinflammatory mediators (Ref 1).  It is not known if this could be related to the hypothyroid issues I am experiencing.  From the treatment summary:

“Angela’s history and laboratory evaluation are not clearly suggestive of a specific etiology or process to explain her relapsing-remitting urticaria and angioedema. We discussed the limitations of commercially availably laboratory tests to assess immune function, which is broad, complex and influenced by genetics and environment.”

So the immunologist’s treatment plan is to continue to suppress the immune response with high doses of the histamine inhibitors and asthma medication, with a plan to start tapering in a few months, and to continue with the immune system boosting vitamins and supplements that I currently take.

MY plan is to make 2016 the healthiest year of my life. To help make that happen, I have adjusted my mindset, diet, exercise and lifestyle.  See my next blog post for the deets on my course of action.

Angela

References:

  1. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2810697/

November 21, 2015 Posted by | Health | , , , , , , , , , | Leave a comment

When Your Own Body is the Enemy

Autoimmune post 3

I am a self-proclaimed health and wellness nut. I take exceptionally good care of myself, so I should be feeling FANTASTIC, right? Unfortunately, not even close. I am so very grateful, however, that I do take great care of myself – I cannot imagine how much worse this might be if I did not.

What I have discovered through the journey I will describe below is that the most helpful thing to me has been reading message boards, blogs and articles written by others that are going through similar challenges. So I think it is time to share this. Perhaps my journey can provide guidance and insight to others – and maybe even some comfort that they are not crazy or alone. Future posts will be more focused and a much quicker read.

As I sit to write this post, my body is covered in giant hives from the top of my head to my toes – itching, painful, ugly welts and wheals. They explode out of my skin so violently that they actually cause bruising. When they finally flatten out, my skin aches for at least another day. I remind myself how much worse it could be – that my face, lips and eyes could be swelling and I could have difficulty breathing, which was my situation LAST week at this time, necessitating a shot of epinephrine and another round of prednisone.

This miserable condition has flared up about every 5-6 years since my twenties, with each flare-up lasting 4-6 months. The physical manifestation of the current flare-up (the hives and urticaria) started in early May and has been the worst flare up yet. The other symptoms – fatigue, constant hunger, weight gain, muscle and joint pain and stiffness, difficulty sleeping, hair loss, increased anxiety, and other symptoms – started about a year and a half before that, with symptoms continuing to worsen until the hives appeared. In the years between the flare-ups, I have lived a pretty normal life – I have gone for years at a time with none of these symptoms.

An endocrinologist recently diagnosed me with Autoimmune Disease.   An autoimmune disease develops when your immune system decides your healthy cells are foreign and it attacks them. It is genetic (my mother had Hashimoto’s Disease and vitiligo and a sister also has vitiligo) and my autoimmune response appears to be triggered by chronic stress – my body stays in the “fight or flight” mode constantly and for months, and cortisol levels never come down. This has both weakened and interfered with the function of my immune system. In between flare-ups, I have been in remission.

I am grateful that there is a name for it and I wish I could say that the diagnosis means that there is a treatment. That is not the case. The immune system is extraordinarily complex and complicated – even for the specialists. The doctors certainly know what triggers the response in me and how it manifests, but aside from the emergency treatments, they do not know how to treat it.

In addition to the urticaria and hives, I have classic Hashimoto’s symptoms, so was tested for that (Hashimoto’s is an autoimmune disease related to hypothyroid and it is genetic). While all of my test results were in the “standard” range, they were at the lowest end of the range. The endo told me that 10% of those with Hashimoto’s symptoms are in the standard range on tests, but that they show benefit from taking thyroid medication, so he prescribed a synthetic thyroid two weeks ago. I am told that it takes 3-4 weeks to notice changes (obviously, my symptoms won’t resolve with the thyroid meds unless I do have hypothyroid). However, I do notice changes already – I sleep better, I have more energy (the daily fatigue is all but gone), my muscles and joints do not ache.

Yet the hives and urticarial remain. I am hopeful that they will magically disappear after 3-4 weeks on they thyroid meds, but the endo warned me that it might not do anything to improve the hives. I am going to visit an immunologist next week. Lots of healthcare fun.

We know that the food we eat can cause inflammation and inflammation is disease. Additionally, my immune system is broken right now – I don’t know what is triggering the hives on any given day. So a few weeks ago, I started a very restricted “autoimmune” re-set diet. For 30 days

  • No dairy
  • No eggs
  • No gluten
  • No soy
  • No nuts
  • No seeds
  • No legumes
  • No sugar
  • No nightshades (tomatoes, potatoes, eggplant, peppers)
  • No processed foods

It is Paleo Plus – and I DO feel like a cave woman – hungry and constantly trying to find something that I can eat! However, the cravings for what I cannot have are subsiding and I am finding recipes for some decent things to eat – believe it or not.  If I go out, I look for somewhere I can get a big piece of meat and a pile of approved veggies.

I hope you reach out to me with comments and questions.

Angela

October 24, 2015 Posted by | Uncategorized | , , , , , , , , , , | 3 Comments

   

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